Medicine
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1) Stronger Than My Collagen- Revisited
The author, a 45-year-old disabled individual, shares personal experiences and revelations from navigating life with rare disorders. They aim to explore themes of intersectionality, trauma, and societal issues through writing. Committed to giving voice to the silenced, the author emphasizes the importance of sharing stories and addressing triggering topics candidly. Continue reading
adhd, advice, America, anthropology, anxiety, Autism, autoethnography, communication, community, content warning, cult of the ego, Diagnoses, ehlers, ethnography, family, Free, gender, healing, health, healthcare, help, homelessness, housing, journal, journaling, journey, klinefelters, life, me too, Medicine, Mental Health, narrative, no paywalls, outreach, participant observation, personal, personal truth, perspective, politics, psychology, ptsd, race, Rare Diagnoses, resources, science, self help, self improvement, social science, sociology, struggle, survival, survivor, therapy, trauma, trigger warning, turners, Wealthcare, writer, writing, Zebra -
AIQ – The Ethics of Tyranny
The discussion delves into the ethical tensions faced by various professions under the Trump administration, highlighting systemic pressure that forces conflict between professional ethics and political directives. It emphasizes resistance by legal, medical, educational, and military sectors rather than alignment with administration policies, showcasing a struggle for integrity amid coercive governance. Continue reading
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Zebra files 46) Treatment Follow Up
The author provides an update on their experience with hyaluronic acid knee injections. After the third round, they report significant pain relief and improved mobility, particularly in relation to their hips. While pain persists, the injections have eased daily activities and reduced overall discomfort. They express gratitude for support during the treatment process. Continue reading
advice, communication, community, content warning, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, help, journal, life, lifestyle, me too, Medicine, no paywalls, outreach, personal truth, perspective, resources, self help, self improvement, struggle, survivor, therapy, trigger warning, Zebra -
Zebra Files 45) Treatment Review- Lumbar Nerve Ablation
The author shares their painful experience with lumbar nerve ablation, detailing the diagnostic rounds and procedures. After two painful rounds of injections with minimal relief, the author concluded the diagnostic tests were unsuccessful. They are now considering a spinal cord stimulator, but express fear and skepticism about further pain management options. Continue reading
acupuncture, advice, back-pain, communication, community, content warning, EDS, Ehlers Danlos Syndrome, family, Free, health, help, journal, life, lifestyle, me too, Medicine, nerve ablation, no paywalls, outreach, pain, pain treatment, personal truth, perspective, resources, sciatica, self help, self improvement, struggle, survivor, therapy, trigger warning, Zebra -
Zebra Files 44) Treatment Review-Hyaluronic Acid
The author discusses their experience with Hyaluronic Acid injections for knee pain relief due to the ineligibility for steroid and stem cell treatments. Despite the painful procedure, initial results show significant improvement in pain levels and knee functionality. The injections, required every 3-6 months, are covered by Medicaid, offering a hopeful solution. Continue reading
advice, chronic pain, communication, community, content warning, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, help, hyaluronic acid, injections, journal, knee, knee pain, life, me too, Medicine, no paywalls, outreach, pain, pain clinic, personal truth, perspective, resources, self help, self improvement, struggle, survivor, therapy, treatment, trigger warning, Zebra -
Zebra Files 42) Assessment
The author describes their journey of seeking formal assessments for Autism and ADHD due to exhibiting related traits without a diagnosis. Despite multiple attempts including consultations with doctors and a mental health group, they face barriers in accessing evaluations, ultimately frustrated but determined to continue pursuing diagnosis options. Continue reading
adhd, advice, anthropology, Autism, autoethnography, barriers to care, communication, community, content warning, EDS, family, Free, health, help, journal, life, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Zebra -
Zebra Files 39) Nope
The author shares their struggles with a physical therapy program, experiencing pain and setbacks despite effort. They emphasize the difficulty of radical acceptance and the societal pressures surrounding therapy. The post includes resources for others facing similar challenges, highlighting the need for understanding and support in managing chronic pain. Continue reading
acceptance, advice, communication, community, content warning, depression, EDS, family, Free, health, help, journal, life, lifestyle, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, physical therapy, Radical Acceptance, resources, self help, self improvement, struggle, survivor, therapy, trigger warning, writing, Zebra -
Zebra Files 36) It’s All Connected
The author expresses frustration with the interconnectedness of insurance systems after losing coverage, preventing access to necessary medications and treatments. Facing bureaucratic obstacles, they question the impact of their work hours on pain levels and quality of life while navigating the intimidating process of submitting disability paperwork. Resilience is tested amid these challenges. Continue reading
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Zebra Files 35) Pain Group
The author attended a Pain Support Group for the first time, prompted by feelings of mild suicidality, depression, and anxiety. While reflecting on their struggles, they shared emotions and experiences with others, finding some usefulness in the conversation. Although physically exhausting, they’re open to the potential benefits of the group. Continue reading
advice, chronic pain, communication, community, content warning, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, gaslighting, group therapy, health, help, journal, life, lifestyle, me too, medical gaslighting, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, resources, self help, self improvement, struggle, support, survivor, therapy, trigger warning, waste of time, Zebra -
Zebra Files 32) Getting My Butt Kicked By Everything
The author reflects on their challenges managing physical pain and limitations, particularly during physical therapy. Despite planning and efforts, they struggle with pain that affects their work and daily activities. Yet, they experience moments of improvement and hope. Upcoming dental surgery and participation in a pain support group offer potential paths forward. Continue reading
advice, chronic pain, communication, community, content warning, EDS, Ehlers Danlos Syndrome, family, fitness, Free, health, help, journal, life, lifestyle, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, PT Physical Therapy, resources, self help, self improvement, struggle, survivor, therapy, trigger warning, Zebra -
Zebra Files 30) Failing At Everything, Everywhere, All At Once
The author shares a challenging life update, highlighting difficulties in managing health amidst a supportive family and job. Despite attempts to follow a strict diet and start physical therapy, pain persists, complicating daily life and work. Financial strains from insurance issues and personal struggles exacerbate feelings of inadequacy and overwhelm. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, boddy, capitalism, communication, community, conspiracy, content warning, diet, dietary needs, EDS, failing, failiure, family, Free, health, help, insurance, insurance companies, journal, life, me too, Medicine, no paywalls, outreach, overextended, overtaxed, overwhelmed, personal truth, perspective, planning, resources, self help, self improvement, special diet, struggle, support, survivor, therapy, trigger warning, Zebra -
Zebra Files 26) Backwards is also Backwards
The author expresses the struggle of managing their health system challenges related to hypermobility, including denied medical referrals and insurance issues. Despite making progress, they are dealing with discouragement, caffeine withdrawal, and the pressure of adult responsibilities. They embrace their current difficulties while maintaining hope for future improvements. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, depression, ehlers danlos, family, fatigue, forward, Free, frustration, health, healthcare, help, hope, journal, life, lifestyle, me too, Medicine, Mental Health, motion, motivation, no paywalls, outreach, perseverence, personal truth, perspective, psychology, resources, self help, self improvement, sociology, spoon theory, spoons, struggle, struggle bus, survivor, therapy, toxic positivity, trigger warning, Wealthcare, Zebra -
Zebra Files 19) The Symptoms
The author shares a comprehensive list of their various health symptoms and diagnoses, including ADHD, autism, arthritis, and chronic pain. They aim to track their health changes as they interact with specialists and emphasize that the list serves as a reference. Many symptoms are severe and include issues like fatigue and digestive sensitivities. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadhd, advice, allergy, ankle pain, anxiety, appointments, arm pain, arthritis, asthma, Autism, back-pain, birth control, blood, blood tests, body, bowels, breathing, bruising, carpel, carpel tunnel, chronic illness, chronic pain, clicking, cold sensitive, communication, community, comorbidities, content warning, control, dairy, dazzle, degenerative, degenerative disc, depo, Diagnoses, diet, Doctors, dyes, edema, EDS, Ehlers Danlos Syndrome, electrical, family, fatigue, foot pain, Free, frequent urination, global joint laxity, gluten, grinding, grip, hand pain, health, hearing, heartbeat, heartrate, heat intolerance, help, hip pain, hypermobile, ibs, ibsc, iud, joint, joint laxity, joints, journal, knee pain, labs, latex, latex allergy, laxity, leg pain, life, lifestyle, low carb, low fat, lower back, mcas, me too, Medical, Medicine, Mental Health, metabolic syndrome, morbidly obese, muscle spasms, neck pain, neuropathy, no paywalls, nonbinary, novaring, numb, obese, obesity, outreach, overweight, pain, peppers, personal truth, perspective, pins and needles, popping, preservatives, reference, resources, safety, sciatica, scoliosis, self help, self improvement, shoulder pain, special diet, specialists, stabbing, struggle, survivor, sweeteners, swelling, symptoms, therapy, tingling, trans, transgender, trigger warning, tummy, tummy ache, varicose veins, vibrating, vision, Wellness, wrist pain, xray, Zebra -
Zebra Files 18) Understanding Where I’m Coming From
The author shares poetry reflecting on personal health struggles, including mental health, ADHD, and obesity. The poem describes a transformative experience with mental anguish, contemplating death before choosing life. The semicolon symbolizes resilience, representing a continuation of the author’s story despite hardships. The work emphasizes overcoming despair and embracing a renewed existence. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, cry for help, family, Free, health, healthcare, help, journal, life, lifestyle, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, Poetry, protyusagendher, psychology, resources, self help, self improvement, semicolon, sociology, struggle, suicidality, suicide, survivor, therapy, trapped, trigger warning, Wealthcare -
Zebra Files 17) Trying To Hit A Moving Target
The writer compares managing health challenges to eating a whole elephant, emphasizing ongoing struggles with pain, medical tests, and difficult lifestyle choices. They face guilt over limitations and are exploring dietary changes to alleviate symptoms. Despite setbacks, they remain committed to seeking treatment and improving their well-being while acknowledging the complexities involved. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, care, choices, communication, community, content warning, diet, Doctors, drugs, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, journal, labs, life, lifestyle, me too, Medicine, meds, Mental Health, moving target, mri, no paywalls, normal, outreach, personal truth, perspective, psychology, resources, results, self help, self improvement, sociology, struggle, survivor, symptoms, target, tests, therapy, trigger warning, Wealthcare, Zebra
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Operation **Reclaim** Loveland 