Medicine
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Zebra Files 15) Meaningless Answers
The author shares their ongoing struggle with persistent symptoms despite normal MRI results, ruling out MS and a CSF leak. They face severe pain, mobility issues, and insurance challenges for necessary physical therapy. A reduction in work hours raises financial concerns, while waiting for further medical evaluations adds to their anxiety. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareabnormal, advice, anthropology, autoethnography, communication, community, content warning, CSF Leak, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, journal, labs, life, lifestyle, me too, Medicine, Mental Health, mri, multiple sclerosis, no paywalls, normal, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, testing, tests, therapy, trigger warning, Wealthcare, your labs are fine, Zebra -
Zebra Files 14) Schrodinger’s Brain
The author explores the complex nature of illness and self-doubt through the metaphor of Schrodinger’s brain, likening their symptoms to being simultaneously real and unreal. This internal struggle involves battling a critical inner voice, “Joyce,” and the challenge of seeking validation amidst fluctuating health. The journey highlights the quest for real answers and relief. Continue reading
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Zebra Files 13) Why Blog About It?
The author blogs about their medical journey for three main reasons: to process and analyze experiences, to create a searchable record of symptoms and illness progression, and to emphasize the importance of representation and visibility for shared experiences. Blogging fosters community and encourages open conversations about health struggles. Continue reading
cycle breaking, Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, blog, communication, community, content warning, conversation, EDS, family, Free, health, healthcare, help, hoofbeats, Invisible, journal, life, lifestyle, me too, Medicine, Mental Health, narrative, no paywalls, outreach, personal truth, perspective, protyusagendher, psychology, records, representation, resources, script theory, self help, self improvement, social change, sociology, speaking up, struggle, survivor, therapy, trigger warning, visibility, Wealthcare, Zebra -
Zebra Files 12) Bracing for the Week Ahead
The author expresses anxiety about upcoming changes at work, including requesting accommodations while facing performance evaluations. They feel disposable and fear job insecurity. Additionally, they are frustrated with their medical care regarding scoliosis and the need for imaging. Amid personal challenges, they strive to manage their responsibilities while seeking answers about their health. Continue reading
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Zebra Files 9) Being Realistic
The author shares their struggle to maintain a healthy diet while juggling multiple responsibilities. They emphasize the importance of cooking from scratch and listening to their body’s needs without being restrictive. Meal prep can be challenging, and they acknowledge the need for grace during the healing journey ahead, which requires understanding their health issues. Continue reading
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Zebra Files 7) Did Not See This Coming
The visit to Dr. Handjob revealed mixed news regarding health concerns. While he initially ruled out a CSF leak, he suggested other possible diagnoses: Ehlers Danlos Syndrome, Cerebral Spinal Fluid Leak, and Multiple Sclerosis. Diagnostic tests will clarify the situation, leaving uncertainty about the outcomes but maintaining a sense of humor. Continue reading
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1) Stronger Than My Collagen
The author, a 45-year-old disabled individual, shares personal experiences and revelations from navigating life with rare disorders. They aim to explore themes of intersectionality, trauma, and societal issues through writing. Committed to giving voice to the silenced, the author emphasizes the importance of sharing stories and addressing triggering topics candidly. Continue reading
adhd, advice, America, anthropology, anxiety, Autism, autoethnography, blog, communication, community, content warning, cult of the ego, Diagnoses, ehlers, ethnography, family, Free, gender, healing, health, healthcare, help, homelessness, housing, journal, journaling, journey, klinefelters, life, me too, Medicine, Mental Health, narrative, no paywalls, outreach, participant observation, personal, personal truth, perspective, politics, psychology, ptsd, race, Rare Diagnoses, resources, science, self help, self improvement, social science, sociology, struggle, survival, survivor, therapy, trauma, trigger warning, turners, Wealthcare, writer, writing, Zebra -
Joey’s Quest for Care
The narrative details the quest of an individual, Joey, and his advocate in diagnosing Klinefelter’s Syndrome, emphasizing the struggle against systemic medical dismissal. Throughout numerous consultations, Joey experiences overlooked symptoms and inadequate responses from various doctors. The eventual confirmation of Klinefelter’s highlights the ongoing need for holistic and attentive healthcare. Continue reading
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Zebra Files 33) What Happened To Nappin?
The author reflects on their struggles to implement a health plan that has ultimately failed due to unpredictable pain and fatigue. Despite making adjustments like relocating their work station, they continue to face setbacks, including physical therapy difficulties. They remain hopeful, planning to share insights and routines to improve their quality of life. Continue reading
advice, chronic pain, communication, community, content warning, EDS, Ehlers Danlos Syndrome, family, Free, health, help, journal, life, lifestyle, Medicine, Mental Health, naps, no paywalls, outreach, personal truth, perspective, physical therapy, Protyus A. Gendher, recovering spoons, resources, rest, self help, self improvement, spoon theory, struggle, survivor, therapy, trigger warning, Wellness, Zebra -
Zebra Files 3) Being Treated Like a Hypochondriac
The author recounts their struggles with medical professionals who dismiss their serious symptoms as hypochondria, attributing them instead to common issues like weight. They detail multiple distressing symptoms, their search for a correct diagnosis, and a newfound awareness of potential connections to connective tissue disorders, all amid frustration and medical gaslighting. Continue reading
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