Zebra Files 33) What Happened To Nappin?

What happened to nappin?

I had a plan.

It was a good plan. I thought about demands and needs and put it all together into a schedule.

I made lifestyle changes – and I failed.

I haven’t have the spoons to cook, and I’ve had to reduce my hours at work even more. It’s so unpredictable when I have control of myself, or a break from my pain.

Some things improved.

My work station has been moved downstairs, so I don’t have to start each work day by climbing the stairs, overstraining my shoulders as I haul my body up through a cacophony of zaps and zings.

With accommodations the overall strain on my system has reduced. Unfortunately, it almost doesn’t feel like it counts.

For example, all of the times that I did have to haul up the stairs impacted my shoulder that was already having impingement symptoms.

Instead of strengthening the little muscles of the shoulder joint, like I’m now doing in PT, those moments relied heavily on my large muscles to overpower my little muscles, putting them into dangerous situations.

As a result, so far, every time I have PT for my shoulder, it lights up for 1-3 days afterwards including constant numbness and tingling, trouble grabbing and grasping, clicking, popping, vibrating, muscle spasms, cramps, pain, and more.

Nothing about the original plan lasted more than two weeks.

Bad days cannot be scheduled, and I’ve had plenty.

When I do feel human, I want to participate in my life– not take a nap.

As a result, sleeping is all I did for a day and a half, because my system crashed hard and without warning, and now I’ve been up since 1:30am because my body aches will not allow me to sleep. There is no such thing as a comfortable position, and it’s too late to take the sleeping pills I have been prescribed.

It’s now 4:30 in the morning, and I’m super tired, and don’t believe I’ll be able to sleep if I go lay back down.

I have PT in the morning.

I’m supposed to work today.

I was supposed to work yesterday.

Moving Forward

I had a plan, and I’ll continue to make plans, and will keep trying to get a handles on this to achieve some quality of life.

For the time being- I’m going to try to remember that I might actually need the naps, even if I’m feeling a little better.

Hopefully, at some point I will get it through my head that the good moments don’t mean that the severity has decreased- and I should continue to do the things.

Keep coming back- in my next posts I’ll be exploring what I’ve learned in PT- and sharing the motion routine that will be supporting my body moving forward.

Have a wonder-filled day!



What do you think?